tag:blogger.com,1999:blog-7760092979275628407.post2966172814072154343..comments2023-05-03T04:26:32.296-07:00Comments on Amy's Journey Through Topical Steroid Withdrawal: Lots Going OnAnonymoushttp://www.blogger.com/profile/10291615262058417155noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-7760092979275628407.post-19435726427987737942014-04-02T16:44:09.387-07:002014-04-02T16:44:09.387-07:00Hello. Im mom of 14 yo girl who I just figured out...Hello. Im mom of 14 yo girl who I just figured out has red skin syndrome. Im so relived that now I know why she is doing worse then ever. Worried so much that something more dangerous is going on... Im also a family medicine physician that is looking outside of the box 100%! Does anyone have lymph nodes swelling , that is one thing that concerned me with my daughter.. I guess if you are so inflamed lymph nodes will react.. She is so cold all the time and cant sleep. God bless all moms that are going thru this!Anonymoushttps://www.blogger.com/profile/10252787334080108816noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-41547306291929691572014-03-16T00:52:02.012-07:002014-03-16T00:52:02.012-07:00Hi Lena,
We are doing the same thing for our daug...Hi Lena,<br /><br />We are doing the same thing for our daugther but we stopped using the steriods a year earlier than yourselves, so the affects are way less servere than poor Amys. Your blog keeps reminding me we are doing the right thing. We have seen two different demotologists now and both try to give us more steriods! Playing it cool as the welfare thing has crossed my mind, so<br />really feel for you. <br /><br />Our daugther has had a blood allergy test and it has shown nothing. So we went to an alternative therapist and she had a sensitivity test, non invasive. She showed quite a few sensitivities to things like: wheat, cow products, citrus fruit, preservatives, sugar. We have eliminated some or theseand lowered others. Within the first week she lost 'the itch'. It is not the cure to the withdrawal but is certainly helping with the symptoms and I have heard other parents doing this for the withdrawal period and then reintroducing and they are fine. <br /><br />Amyway that's just our coping mechanism. We live in hope we will see her arms improve soon.<br /><br />Great to hear your blog. Wishing you all the best.<br /><br />LauraAnonymoushttps://www.blogger.com/profile/06681567854879771323noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-70860000102082607962014-03-07T02:31:28.972-08:002014-03-07T02:31:28.972-08:00Hello again, I posted the anon comment, above. Blo...Hello again, I posted the anon comment, above. Blog all up and running and I think I connected with you on google+ http://steroidsmakeeczemaworse.blogspot.co.uk/2014/03/2-months-in.html. From Louise :)Anonymoushttps://www.blogger.com/profile/02773758211166961303noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-20809953432956123122014-03-06T01:05:12.689-08:002014-03-06T01:05:12.689-08:00I'm going to discuss other options with them G...I'm going to discuss other options with them Geanna because she is so worried about that wipe! but I wouldn't have though to ask about the handwash so thank you xxAnonymoushttps://www.blogger.com/profile/10291615262058417155noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-79068997325716159042014-03-05T16:29:09.848-08:002014-03-05T16:29:09.848-08:00Have them use some handwashing soap the next time ...Have them use some handwashing soap the next time Amy has to have blood drawn. That doesn't burn like those alcohol wipes do.Geanna Bellhttps://www.blogger.com/profile/16168412875995362511noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-31784374366162584522014-03-05T05:33:22.104-08:002014-03-05T05:33:22.104-08:00Thank you so much for your comment, I strongly bel...Thank you so much for your comment, I strongly believe that Steroids have a lot to answer for. I know they have their uses but they're not the answer to all the problems and just wish that more doctors would recognise that. I think starting a blog would be a great idea, it would give you chance to reach out to others and help others too and yes of course it would be lovely to connect. I wish your son a very speedy healing. Lena (Amy's Mum) xxAnonymoushttps://www.blogger.com/profile/10291615262058417155noreply@blogger.comtag:blogger.com,1999:blog-7760092979275628407.post-46015655964005023222014-03-05T04:11:10.743-08:002014-03-05T04:11:10.743-08:00YOU ARE NOT ALONE!!!! My boy is 10 and we have bee...YOU ARE NOT ALONE!!!! My boy is 10 and we have been using steroid cream since he was baby. Mostly on his face. We stopped in January this year. His face is unrecognizable and we went through an awful appointment with the dermatologist. I can't tell you how many times we have been seen as 'neglectful' parents because the creams don't work. We realized the steroids were not working again and we do not want to go through the same hassles again switching steroid creams only to find they stop working after a few months. We are not going back to steroids. After realizing they might actually be causing the problem I don't think we will be going back to them ever again. I may even start my own blog. It would be awesome if his skin improves from giving up the creams. At the moment he is on the gaps diet, and surprisingly most of his food allergies have now gone, but his skin hasn't improved. This has led me to believe it is a reaction to the steroid creams. Maybe I could start a blog too and we could connect ours together? It would be a help to me, since we need as much support as we can get. Bless your beautiful daughter, our hearts are with you!Anonymousnoreply@blogger.com